This pandemic has everyone talking about the novel coronavirus, and unfortunately, other terrible diseases have remained in second positions. For instance, cancer – this is an extremely important issue to be debated in 2022 and this is the reason for which we are also approaching it.
It’s been revealed that in order to better understand survivor and caregiver experiences, positive change can be made on both the individual and systemic levels.
This is according to an expert from the Cancer Support Community, a nonprofit that recently launched its 2022 Cancer Experience Registry.
“The research into the patient and caregiver experience has to keep pace with innovations in clinical care if we’re to meet the broad spectrum of patient and caregiver needs.”
This is what Heather Badt, the executive director of the Research and Training Institute at Cancer Support Community, said in an interview with CURE®.
The many impacts of cancer
Cancer Support Community’s Cancer Experience Registry collects responses from patients, survivors, and caregivers regarding the emotional, physical, practical, and financial impacts of cancer.
It’s also important to note the fact that this also helps to identify critical unmet needs.
The goal, according to Badt, is to “elevate the voice of all people impacted by cancer and to influence real-world outcomes to ensure patients, survivors and caregivers get needed support and resources.”
The original piece that delivers the info also addresses the importance of anxiety, depression, and more in patients and caregivers as well.
The previous Cancer Experience Registry, which was published in 2020, found out that 49% of participants were at risk for clinically significant anxiety.
More than that, it’s also worth noting that about 40% were at risk for clinically significant depression.
“This is really important because while new clinical guidelines and standards require that patients be screened more comprehensively for distress, others only require that patients be screened for depression,” Badt said.
“A patient’s well-being can really have an impact on their care experience and outcomes.”
It’s important for all involved parties to know that help is out there and it should be taken advantage of. Check out more details in order to learn all the available data.